Family to Family Iowa

Community Partners

Access for Special Kids (ASK)
Access for Special Kids (ASK)

Access for Special Kids (ASK) Family Resource Center is a "one-stop shop" for children and adults with disabilities and their families throughout the state of Iowa. Through various projects and partnerships, ASK Resource Center provides a broad range of information, training, advocacy, support, referral and direct-services coordination related to the needs of persons with all types of disabilities. A single contact to ASK will provide individuals and families a direct link to the most appropriate services and supports to meet their needs regarding legal matters, special education, health care coordination, mentoring opportunities, and more. ASK Family Resource Center is here for you – Just ASK!

Contact: ASK Family Resource Center, 5665 Greendale Road, Suite D, Johnston, IA 50131.  Phone: 1-515-243-1713 or toll free 800-450-8667. E-mail: info@askresource.org.

Arc of Iowa
Arc of Iowa

The Arc of Iowa exists to ensure that people with intellectual and developmental disabilities receive the services, supports and opportunities necessary to fully realize their right to live, work and enjoy life in the community without discrimination. The Arc believes that all people with intellectual and related developmental disabilities have strengths, abilities and inherent value; are equal before the law; and must be treated with dignity and respect. The Arc represents, supports and acts on behalf of individuals and their families regardless of level of disability or membership in The Arc. The Arc believes in self-determination by empowering people with the supports needed to make informed decisions and choices. The Arc is committed to improving the quality of life for Iowans with disabilities.

Contact: The Arc of Iowa, 3821 71st St. Suite A, Urbandale, IA 50322.  Phone: 1-515-210-6686 or 1-800-362-292.

Autism Society of Iowa
Autism Society of Iowa

Autism Society of Iowa is the state chapter for the Autism Society of Iowa. We provide parent packets for families of newly diagnosed children; maintain the state Web site www.autismia.org; send a monthly e-newsletter; provide a state educational conference each fall for which families can apply for need-based scholarships to attend; provide matching summer grants for recreational and summer camps to integrate those with autism spectrum disorder; present the Stephen Tsai Excellence in Autism Education Award to a person who has exhibited great compassion and guidance for someone on the autism spectrum; provide a free lending library; and sponsor a "Day on the Hill" for Autism Advocacy at the state Capitol. We have an annual benefit auction, hog roast, bake sale, picnics and other family events throughout the year. We have over 400 members who receive our newsletter, The LINK, and also receive a discount to our conferences.

Contact: Autism Society of Iowa, 4549 Waterford Drive, West Des Moines, IA  50265.  Phone: 1-888-722-4799 or 1-515-327-9075. E-mail: autism50ia@aol.com.

Brain Injury Association of Iowa
Brain Injury Association of Iowa

Brain Injury Association of Iowa is the second chartered affiliate of the Brain Injury Association of America (BIAA). As part of a national network of state affiliates, our constituents include Iowans with brain injuries, their family members, their friends, and the professionals and caregivers who support them. Founded in 1980, our mission is “To create a better future through prevention, advocacy, education, research and support.” Our expertise and efforts range across medical and disability organizations, issues, policy and practice. The Iowa Brain Injury Resource Network (IBIRN) provides Neuro-Resource Facilitation services; Iowa Brain Injury Resource Network sites; BIA-IA tote bags; education, training and consultation services; Brain Injury Support Network (BISN); as well as advocacy, prevention, and research.

A Chartered State Affiliate of the Brain Injury Association of America

Contact: Brain Injury Association of Iowa, 7025 Hickman Road, Suite 7, Urbandale, IA  50322.  Phone: 1-800-444-6443.  E-mail: info@biaia.org.

Center for Disabilities and Development (CDD)
Center for Disabilities and Development (CDD)

The Center for Disabilities and Development (CDD) is the nationally designated University Center for Excellence on Developmental Disabilities (UCEDD) for the state of Iowa. UCEDDs share a vision in which all Americans, including Americans with disabilities, participate fully in their communities. As Iowa’s UCEDD, CDD partners with Iowans with disabilities, their family members, providers, state and local agencies, and others. We strive to improve the health and full community participation of persons with disabilities and to advance the community services on which they rely. We do this through pre-service training, community training and technical assistance, clinical services and direct community supports, and research and information dissemination.

Contact: CDD, 100 Hawkins Dr., Iowa City, IA 52242.  Phone: 1-319-353-6900.  E-mail: disability-resources@uiowa.edu.

Child Health Specialty Clinics (CHSC)
Child Health Specialty Clinics (CHSC)

Child Health Specialty Clinics (CHSC), is Iowa’s Title V program for children and youth with special health care needs (CYSHCN), ages 0-21. CHSC has 13 regional offices and one administrative office located throughout the state. CHSC’s vision is to assure a system of care for CYSHCN that includes family support, care coordination, direct clinical services and infrastructure building. Our Family Navigators are persons who are themselves parents or family members of CYSHCN. Care coordination and family support are available at no charge to families. Family Navigators, ARNPs, staff nurses, and registered dietitians work together with community resources to assure the health, development and well-being of CYSHCN.

Contact: CHSC, 100 Hawkins Drive, Room 247 CDD, Iowa City, IA 52242-1011. Phone: 1-319-356-1117 or 1-866-219-9119.  E-mail: kathy-colbert@uiowa.edu.

ChildServe
Child<em>Serve</em>

ChildServe is a nonprofit organization that partners with families to help children with special health-care needs live a great life. Originally founded in 1928 as a convalescent home for children, today ChildServe provides specialized pediatric health-care services to more than 2,400 children in Iowa. Services include skilled nursing, transitional care, homecare, case management, respite, supported community living, day health, day habilitation, adaptive equipment, group homes and apartments, rehabilitation and developmental therapies, integrated childcare and more. Through the support of private insurance, public funds and the generosity of donors, ChildServe offers accessible, family-centered care unique to each child’s needs, hopes and dreams.

ChildServe, 5406 Merle Hay Road, Johnston, IA 50131. Phone: 515-727-8750.

Children and Adults with Attention-Deficit/Hyperactivity Disorder of Iowa (CHADD)
Children and Adults with Attention-Deficit/Hyperactivity Disorder of Iowa (CHADD)

CHADD serves individuals with AD/HD and their families. CHADD offers support for individuals, parents, teachers, professionals and others. CHADD's primary objectives are to provide a support network for parents and caregivers; to provide a forum for continuing education; to be a community resource and to disseminate accurate, evidence-based information about AD/HD to parents, educators, adults, professionals, and the media; to promote ongoing research; and to be an advocate on behalf of the AD/HD community.

Contact: CHADD of Iowa, 1422 Houser St., Muscatine, IA  52761. Phone: 1-563-263-8476.  E-mail: chadd-of-iowa@chadd.net.

Children at Home
Children at Home

The Children at Home program is a subsidy for families with a child under age 22 with a developmental disability. The program is designed to provide support for families to help keep their child at home. The program is currently available in 20 counties in Iowa: Black Hawk, Boone, Cass, Cerro Gordo, Chickasaw, Clinton, Dubuque, Floyd, Grundy, Jackson, Johnson, Keokuk, Mahaska, Mills, Mitchell, Monroe, Montgomery, Story, Wapello and Washington. The financial assistance is intended to enable families to obtain those services and supports not met by other service programs

Contact:  Chris Rubino, 515-281-5127, crubino@dhs.state.ia.us

Community Circle of Care
Community Circle of Care

Community Circle of Care is a grant initiative awarded to the Department of Human Services in northeast Iowa by the Federal Substance Abuse and Mental Health Services Administration (SAMHSA) to develop a System of Care for children with serious emotional and behavioral challenges. This initiative works to provide care in the community with a connection to specialized services through a care coordinator who will help the family and child/youth get the services and supports they need through a wraparound system. Services provided include assessment, evaluation, diagnosis and care coordination to link children and families with local community- based services and supports.

Contact: Community Circle of Care, 799 Main St., Suite 250, Dubuque, IA 52001.  Phone: 1-563-583-5545 or 888-583-5545.

Disability Resource Library (DRL)
Disability Resource Library (DRL)

Disability Resource Library (DRL), is a statewide library service providing free, reliable health information to Iowans with disabilities. We also provide information to people with chronic health conditions, to families, and to care providers. Integrating state-of-the-art electronic resources with a 5,000-volume collection, DRL staff reaches out to more than 3,000 patrons annually throughout Iowa. In addition to traditional library materials and comprehensive database research, the library serves as the Iowa Program for Assistive Technology point of access for lendable assistive technology for home trial. Currently this Software/Hardware Lending Library consists of 200 pieces of technology. The Disability Resource Library is a unit of the Center for Disabilities and Development located in Iowa City.

Contact: Disability Resource Library, CDD, 100 Hawkins Drive, Iowa City, IA  52242.  Phone:  319-356-1345 or 800-272-7713.  E-mail: disability-library@uiowa.edu.

Early ACCESS
Early ACCESS

Early ACCESS connects families with early-intervention services to help their infants and toddlers who need extra help to grow and learn, and to help the family navigate the early-intervention system.

Children are eligible for Early ACCESS services if the child and his or her family live in Iowa, if the child is between birth through two years of age, and if the child meets one or both of the following criteria:

  • The child has a delay or a high probability of developing a delay in one or more developmental areas
  • The child has been diagnosed with a physical or mental condition that has a high probability of resulting in a significant delay in development as the child gets older.

Contact: Phone: 1-888-IAKIDS1 (1-888-425-4371).  E-mail: earlyaccessia@vnsdm.org.

Epilepsy Foundation North/Central Illinois, Iowa, Nebraska
Epilepsy Foundation North/Central Illinois, Iowa, Nebraska

Epilepsy Foundation of North/Central Illinois, Iowa, Nebraska ensures that people with seizures are able to participate in all life experiences, and works to prevent, control and cure epilepsy through services, education, advocacy and research.

Contact: Epilepsy Foundation of North Central Illinois, Iowa, Nebraska, 1111 Ninth St., Des Moines, IA 50314. Phone: 515-238-7660 E-mail: efiowa@efncil.org

Guide By Your Side
Guide By Your Side

Guide By Your Side is a Hands & Voices program that utilizes professionally trained parents to provide peer support and unbiased information to families of infants and toddlers with a hearing loss. The support services are offered free of charge through the combined efforts of Iowa Hands & Voices and the Iowa Early Hearing Detection and Intervention (EHDI) program.

Contact: Guide By Your Side, 100 Hawkins Drive, Room 247-CDD, Iowa City, IA  52242-1011.  Phone: 1-866-219-9119.  E-mail: iowa-ehdi@uiowa.edu.

Hawkeye Area Down Syndrome Association
Hawkeye Area Down Syndrome Association

Hawkeye Area Down Syndrome Association Inc. provides education, support and advocacy to those individuals, their friends, families and professionals in the Iowa City and Cedar Rapids area that are blessed by Down syndrome. We hope that through our efforts, we can enhance the quality of life for all individuals with Down syndrome.

Contact: Hawkeye Area Down Syndrome Association, 162 Collins Road, #328, Cedar Rapids, IA 52402.  Phone: 319-775-5146.  E-mail: eharlan@hadsa.org.

Hawkeye Valley Area Agency on Aging
Hawkeye Valley Area Agency on Aging

Hawkeye Valley Area Agency on Aging coordinates services for individuals to help them maintain the independence they desire. Services include options counseling, case management, meal programs, caregiver support, respite services, consumer protection, evidence-based health programs, and advocacy. We serve the following counties in Iowa: Black Hawk, Bremer, Buchanan, Butler, Chickasaw, Grundy, Hardin, Marshall, Poweshiek and Tama. HVAAA provides services to persons in the aging and disability communities age 18 years and older, to family members and caregivers, and to professionals and providers.

Contact: Hawkeye Valley Area Agency on Aging, 2101 Kimball Ave, Suite 320, Waterloo, IA 50704. Phone: 319-272-1767 or 877-538-0508.

Health Literacy Iowa (HLI)
Health Literacy Iowa (HLI)

Health Literacy Iowa (HLI) is a statewide resource with a mission to promote and facilitate the ability of all Iowans to use effective communication to optimize their health. Health literacy is defined as “getting and using easy-to-understand information about your health.” Health Literacy Iowa offers many services, including training and education, assistance making materials more user friendly, evaluation and research, and promoting partnerships.

Contact: Health Literacy Iowa, Mary Ann Abrams, MD, MPH.  Phone: 1-515-471-9788.

Heritage Agency on Aging
Heritage Agency on Aging

The Heritage Agency on Aging is the leader in planning, coordinating and funding programs that serve Benton, Cedar, Iowa, Johnson, Jones, Linn and Washington counties.  Heritage serves people age 60 and above as well as their families, communities and governments.  Services include  information and assistance, case management, nutritional and educational programs, and elder-abuse intervention.  In addition, The Heritage Agency serves as an Aging and Disability Resource Center (ADRC) serving adults 18 years of age and older with a disability (either self-proclaimed or currently on disability) through advocacy and options counseling.

Contact:  The Heritage Agency on Aging, Kirkwood Community College, 6301 Kirkwood Blvd. SW, Cedar Rapids, IA  52406.  Phone:  319-398-5559 or 800-322-5934.

Iowa COMPASS
Iowa COMPASS

Iowa COMPASS is Iowa’s leading source for information on assistive technology and disability services.  Iowa COMPASS believes that information empowers persons with disabilities and their families to make informed decisions. Our knowledgeable staff provides accurate, current information and referrals in a timely manner. Iowa COMPASS is a program of the Center for Disabilities and Development, The University of Iowa’s Center of Excellence in Developmental Disabilities.

Contact: CDD, 100 Hawkins Drive, #S295, Iowa City, IA 52242.  Phone: (Voice) 1-800-779-2001 (TTY) 1-877-686-0032.  E-mail: iowa-compass@uiowa.edu.

Iowa Department of Education, The Parent & Educator Connection (PEC)

Iowa Department of Education, The Parent & Educator Connection (PEC) is a program that provides services and supports for families who have children with Individual Education Programs (IEPs) and for educators who teach them in school. The program has been in existence since 1984 and was designed and developed by parents and teachers working together with direction and fiscal support from the Iowa Department of Education, Bureau of Children, Family and Community Services. The belief then and today is that through families and teachers working together, children will benefit and have opportunity to be successful. By learning and working together, partnerships can develop that provide a powerful impact on the lives of children with disabilities.

Contact: Parent-Educator Connection Program, The Iowa Department of Education, Grimes State Office Building, Des Moines, IA  50319.  Phone:  515-242-5295. 

Iowa Department of Human Services
Iowa Department of Human Services

The Iowa Department of Human Services helps individuals and families achieve safe, stable, self-sufficient and healthy lives, thereby contributing to the economic growth of the state. We do this by keeping a customer focus, striving for excellence and sound stewardship of state resources while maximizing the use of federal funding and leveraging opportunities and by working with our public and private partners to achieve results.

Iowa Developmental Disabilities Council
Iowa Developmental Disabilities Council

Iowa Developmental Disabilities Council advocates for and prepares Iowans with developmental disabilities to more effectively advocate for a coordinated system of services and supports that provide them with opportunities to live in communities of their choice.

Contact: Iowa Developmental Disabilities Council, 617 E. Second St., Des Moines, IA 50310.  Phone: 515-281-9082 or 800-452-1936. 

Iowa Federation of Families for Children's Mental Health
Iowa Federation of Families for Children's Mental Health

Iowa Federation of Families for Children’s Mental Health believes that the best way to help families and their children improve their lives is through support, information and advocacy. An informed parent is a critical piece of all planning teams. The mission of Iowa Federation of Families for Children’s Mental Health is to link families to community, county and state partners for needed supports and services and to promote systems change that will enable families to live in a safe, stable and respectful environment.

Contact: Iowa Federation of Families for Children’s Mental Health, 106 South Booth, Anamosa, IA 52205.  Phone: 319-462-2187 or 888-400-6302.  E-mail: help@iffcmh.org.

Iowa Foster and Adoptive Parents Association
Iowa Foster and Adoptive Parents Association

The Iowa Foster and Adoptive Parents Association empowers, supports and advocates for foster, adoptive and kinship families in Iowa. IFAPA provides training, peer support and resources to promote safety, permanency and well-being for Iowa’s children.

Contact: Iowa Foster and Adoptive Parents Association, 6864 NE 14th St., Suite 5, Ankeny, IA 50023.  Phone: 515-289-4567 or 800-277-8145.  E-mail: ifapa@ifapa.org.

Iowa Hands & Voices
Iowa Hands & Voices

Iowa Hands & Voices is a parent-driven, nonprofit organization dedicated to supporting families of children who are deaf or hard of hearing. We are unbiased about amplification choices and communication methodologies.  We believe that what works for the child makes the choice right. Our membership includes families and professionals from different approaches to and experiences with deaf and hard-of-hearing children.

Contact: Iowa Hands & Voices, PO Box 65071, West Des Moines, IA 50265.  Phone: 515-661-4248.  E-mail: info@iowahandsandvoices.org

Iowa KidsNet
Iowa KidsNet

Iowa KidsNet is a statewide collaboration of Iowa nonprofit agencies dedicated to children and families. Iowa KidsNet currently has the responsibility to recruit, train, license and support all of Iowa's foster and adoptive (adoption from foster care) parents. Iowa KidsNet operates in all 99 counties of Iowa, partnering with various agencies and the Iowa Department of Human Services  in order to achieve the best possible outcomes for children. In addition, Iowa KidsNet provides free post-adoption support services to any Iowa family with a DHS-subsidized adoption. This includes resources, information and support to help meet the family's unique needs. 

 

 

 

Contact: Iowa KidsNet. Phone: 800-243-0756.

Iowa Statewide Vision Services/Iowa Braille School

Iowa Statewide Vision Services/Iowa Braille School supports children (birth - 21) with a visual impairment who have an IFSP or an IEP. Parents, Teachers of the Visual Impaired (TVI), Certified Orientation and Mobility Specialists (COMS), classroom teachers, and other service providers may request assistance. The following services are provided: resource and instructional materials, consultation, and collaboration. All services are provided free of charge to students, families, LEAs, and AEAs.

Contact: Iowa Statewide Vision Services/Iowa Braille School, 1002 G Ave., Vinton, IA 52349.  Phone: 319-472-4371 or 800-645-4579.

Lutheran Services In Iowa
Lutheran Services In Iowa

For nearly 150 years, Lutheran Services in Iowa has stood beside Iowa's most vulnerable people, fulfilling a promise to respond to the love of Jesus Christ through compassionate service.  We partner with children, youth and families, people with disabilities, the elderly and people of refugee status, helping people in times of need, strengthening families and advocating dignity and social justice for our neighbors in the community.   LSI is one of Iowa's largest human service agencies with over 1,000 employees. It is nationally accredited by the Council on Accreditation.   LSI serves people of all ages, genders, nationalities, religions, ethnicities and sexual orientations. LSI is affiliated with Lutheran Services in America and the three Iowa synods of the Evangelical Lutheran Church in America.

Contact:  Lutheran Services in Iowa, 3200 University Ave., Des Moines, IA 50311.  Phone:  515-271-7339.  E-mail: LSIowa@LSIowa.org

Magellan Consumer/Family Advocate
Magellan Consumer/Family Advocate

Magellan Consumer/Family Advocate, Diane Johnson, RPh, is a pharmacist by trade, college instructor by choice, and a mental-health consumer/family advocate by design.  Diane’s adventures in the realms of mental illness began with her daughter’s early diagnosis of disorganized schizophrenia.  She has combined her previous experience in pharmacy and academia with her personal experience of rearing a child with a severe mental illness and has become a consumer/family voice for recovery and resiliency.  Diane is a certified facilitator for Mental Health First Aid, Wellness Recovery Action Plan (WRAP), NAMI’s “Visions for Tomorrow,” and “Parents and Teachers as Allies.”

Contact: Magellan Consumer/Family Advocate, Diane Johnson.  Phone: 515-273-5054.  E-mail: DLJohnson@magellanhealth.com.

NAMI IOWA
NAMI IOWA

NAMI IOWA consists of 20 support groups in the state and other information contacts located around the state. Our office provides families with support, systems advocacy and information services.

Contact: NAMI Iowa, 5911 Meredith Drive Suite E, Des Moines, IA 50322.  Phone: 1-515-254-0417 or 1-800-417-0417.  E-mail: info@namiiowa.com.

National Association of Parents of Children with Visual Impairments - Iowa (NAPVI)
National Association of Parents of Children with Visual Impairments - Iowa (NAPVI)

National Association of Parents of Children with Visual Impairments – Iowa (NAPVI) is a non-profit organization of, by, and for parents committed to providing support to the parents of children who have visual impairments. NAPVI is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and training to assist parents in helping children reach their potential. NAPVI is dedicated to: giving emotional support, initiating outreach programs, networking and advocating for the educational needs and welfare of children who are blind or visually impaired.

Contact: National Association of Parents of Children with Visual Impairments – Iowa, 1002 G Avenue, Vinton, Iowa 52349.  Phone: 1-319-472-5221 or 1-800-645-4579, extension 1028. 

The Prader-Willi Syndrome Association of Iowa

The Prader-Willi Syndrome Association of Iowa is the state chapter for the Prader-Willi Syndrome Association (USA).  PWSA(USA) is an organization of families and professionals working together to promote and fund research, provide education and offer support to enhance the quality of life of those affected by Prader-Willi syndrome. PWSA(Iowa) helps local families with support and helps locate resources or services, offering stipends/scholarships for things such as travel, conferences, camps, etc. related to PWS, and hosting Family Days where families can get together just to meet and have fun.

Contact: The Prader-Willi Syndrome Association, www.pwsaiowa.org.

Visiting Nurse Services of Iowa, Family Peer Support Program
Visiting Nurse Services of Iowa, Family Peer Support Program

Visiting Nurse Services of Iowa, Family Peer Support Program provides services to families with youth who have been diagnosed with a serious emotional disturbance (SED) including, but not limited to, bipolar Disorder, attention deficit hyperactivity disorder (ADHD), oppositional defiant disorder (ODD), reactive attachment disorders (RAD), anxiety disorders and schizophrenia.  The Family Peer Support Program sustains the child and his or her family through the development of strategies and interventions that assist families to reduce stress and depression as well as increasing the child's and family’s social and emotional strength.  The program is provided by staffs who are themselves parents of children diagnosed with an SED and who have completed the Family to Family Iowa Navigator training.  The Family Peer Support Program is available to families with a child who is eligible for Title XIX services through Magellan Behavioral Care of Iowa or through purchasing the service at an affordable monthly rate.

Contact:  Visiting Nurse Services of Iowa, 1200 University Avenue, Suite 205, Des Moines, IA 50314.  Phone: 515-558-6247.  E-mail: familypeersupport@vnsia.org.

Family to Family Iowa
ASK Resource Center
5665 Greendale Road, Suite D  |  Johnston, Iowa 50131
Toll-free (800) 450-8667  |  Fax (515) 243-1902
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The network of supports and services
for Iowans with special needs.